The Government of India approved the "National Policy for Rare Diseases, 2021" on 30th March 2021. It is a step in the right direction; at the time it necessitates optimal utilization of allocated resources and timely appraisal of the policy itself....
The French National Plan for Rare Diseases and the National reference centre for rare diseases: which impact on daily practice in neurology?oral conditiondepressiongray matter volumeasymptomatic cerebrovascular diseaseperiodontitisThe Re...
National Plans for Rare Diseases (RDs) are the common denominator of current public health policy concerns on RDs across the EU. With the aim of a better d... Taruscio,A E,Gentile,... - 《Public Health Genomics》 被引量: 15发表: 2013年 Developing a national plan for rare diseases in...
recognizing that a number of healthcare and knowledge issues are common to all rare diseases in spite of the wide variety of their clinical manifestation, has recently initiated the promotion of national plans and comprehensive strategies for improving the provision of care to rare disease patients....
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The development of new and improved vaccines continues to represent a significant priority for NVAC, and we identified several challenges related to future vaccine innovation. Given the many factors that impact on policy changes in the vaccine and immunization enterprise, we encountered challenges ...
MEETING ABSTRACT Open AccessDeveloping a national plan for rare diseases inGermany through concerted action: the nationalaction league for people with rare diseasesVéronique Héon-Klin 1* , Alexandra Halbach 1 , Miriam Schlangen 2 , Birgit Schnieders 1From 6th European Conference on Rare Diseases ...
2. Enhanced coverage for rare diseases implemented for the first time. Orphan drugs, pharmaceuticals that remains commercially undeveloped owing to limited potential for profitability, remain a key focus in the 2023 NRDL revision. In the 2022 NRDL revision, the NSHA introduced a new po...
This shows that the burden in low SDI regions was high and may indicate that health stakeholders and policy-makers in these areas need to make greater efforts in policies and medical intervention and prevention. Fig. 3 Global burden and trends of foreign bodies for 204 countries and territories...
The adolescent onset of drug abuse and dependence revealed critical windows of opportunity for prevention efforts. The results of this study indicate that immediate action must be taken to educate physicians, the public, and policy makers about drug use disorders and their treatment and to develop ...