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Rare diseases (RD) are individually rare, although encompass a significant proportion of the population, affecting not only the individuals but also their families. In Brazil RD is defined by the Ministry of Health as a disorder that affects up to 65 individuals in 100,000, or 1.3 individuals ...
In 2005, the French National Authority for Health (Haute Autorité de Santé) called for the establishment of clinical practice guidelines for rare diseases (protocole national de diagnostic et de soins; PNDS). The purpose of a PNDS is to provide health care professionals with guidance regarding...
The Zero-COVID policy has had a significant impact on basic medical insurance. On one hand, the vaccines, the widely used PCR test, and antigen test were covered by the government (partly with medical insurance and partly with fiscal income) for some time. On the other ha...
The French National Plan for Rare Diseases and the National reference centre for rare diseases: which impact on daily practice in neurology?oral conditiondepressiongray matter volumeasymptomatic cerebrovascular diseaseperiodontitisThe Rela...
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recognizing that a number of healthcare and knowledge issues are common to all rare diseases in spite of the wide variety of their clinical manifestation, has recently initiated the promotion of national plans and comprehensive strategies for improving the provision of care to rare disease patients....
review on national policy of rare diseases, 2021 In a country like India that already struggles to provide basic health facilities to its vast population, it becomes very difficult for people suffering fr... D Jakasaniya,R Tekwani - 《Jindal Journal of Public Policy》 被引量: 0发表: 2022年...
The need for COVID-19 research in low- and middle-income countries. Glob Health Res Policy. 2020;5:33. https://doi.org/10.1186/s41256-020-00159-y. [published Online First: 2020/07/04]. Article Google Scholar National Health Commission. Yearbook of Health Statistics of China—2019. ...