The Government of India approved the "National Policy for Rare Diseases, 2021" on 30th March 2021. It is a step in the right direction; at the time it necessitates optimal utilization of allocated resources and timely appraisal of the policy itself....
Rare diseases (RD) are individually rare, although encompass a significant proportion of the population, affecting not only the individuals but also their families. In Brazil RD is defined by the Ministry of Health as a disorder that affects up to 65 individuals in 100,000, or 1.3 individuals ...
NORD is dedicated to supporting education, elevating care, advancing research, and driving policy for rare diseases
NORD is dedicated to supporting education, elevating care, advancing research, and driving policy for rare diseases
The National Organization for Rare Disorders (NORD) is an American non-profit organization aiming to provide support individuals with rare diseases by advocating and funding research, education, and networking among service providers. It was founded in 1983 by Abbey Meyers, along with individuals with...
The French National Plan for Rare Diseases and the National reference centre for rare diseases: which impact on daily practice in neurology?oral conditiondepressiongray matter volumeasymptomatic cerebrovascular diseaseperiodontitisThe Rel...
recognizing that a number of healthcare and knowledge issues are common to all rare diseases in spite of the wide variety of their clinical manifestation, has recently initiated the promotion of national plans and comprehensive strategies for improving the provision of care to rare disease patients....
review on national policy of rare diseases, 2021 In a country like India that already struggles to provide basic health facilities to its vast population, it becomes very difficult for people suffering fr... D Jakasaniya,R Tekwani - 《Jindal Journal of Public Policy》 被引量: 0发表: 2022年...
Neglected Diseases National Institutes of Health Announces New Program To Develop Therapeutics For Rare And Neglected DiseasesNational Institutes of Health Announces New Program To Develop Therapeutics For Rare And Neglected DiseasesGeoffrey Spencer
National Plans for Rare Diseases (RDs) are the common denominator of current public health policy concerns on RDs across the EU. With the aim of a better d... Taruscio,A E,Gentile,... - 《Public Health Genomics》 被引量: 15发表: 2013年 Policy recommendations for rare disease centres of...