Abstract Rare diseases (RD) are individually rare, although encompass a significant proportion of the population, affecting not only the individuals but also their families. In Brazil RD is defined by the Ministry of Health as a disorder that affects up to 65 individuals in 100,000, or 1.3 in...
The Government of India approved the "National Policy for Rare Diseases, 2021" on 30th March 2021. It is a step in the right direction; at the time it necessitates optimal utilization of allocated resources and timely appraisal of the policy itself....
The Relationship between Oral Health and Brain Function WATANABE Makoto 日本歯科医学会誌 = Journal of the Japanese Association for Dental Science : JJDS (28), 60-63, 2009-03-31Maud GancelWassilios MeissnerFrançois Tison日本歯科医学会誌 ...
被引量: 0发表: 2023年 review on national policy of rare diseases, 2021 In a country like India that already struggles to provide basic health facilities to its vast population, it becomes very difficult for people suffering fr... D Jakasaniya,R Tekwani - 《Jindal Journal of Public Policy》...
EUROPLAN: a project to support the development of national plans on rare diseases in Europe. National Plans for Rare Diseases (RDs) are the common denominator of current public health policy concerns on RDs across the EU. With the aim of a better d... Taruscio,A E,Gentile,... - 《Pub...
(AHA) Annual Survey reported that only 13.4% of the non-Federal acute care hospitals in the U.S. had adopted basic or comprehensive EHR systems, and only 1.6% have an EHR system with clinical decision support.5With the new policy, “theHealth Information Technologyfor Economic and ...
The European Commission, recognizing that a number of healthcare and knowledge issues are common to all rare diseases in spite of the wide variety of their clinical manifestation, has recently initiated the promotion of national plans and comprehensive strategies for improving the provision of care ...
In 2008, the project to implement a national plan of action for rare diseases (NAP.se) started with a petition to the Federal Ministry of Health. Twelve years later, in 2020, we are now in the middle of the implementation process of this plan, whose character has changed in the meantime...
2. Enhanced coverage for rare diseases implemented for the first time. Orphan drugs, pharmaceuticals that remains commercially undeveloped owing to limited potential for profitability, remain a key focus in the 2023 NRDL revision. In the 2022 NRDL revision, the NSHA introduced a new poli...
被引量: 0发表: 2023年 Climate Policy in the United States and Japan: Prospects in 2005 and Beyond, Workshop Summary Resources for the Future and the Institute for Global Environmental Strategies convened a one and one-half day workshop on domestic and international clima... W Pizer,K Tamura...