POLICY sciencesRARE diseasesHEALTH care rationingMore than 8% of the global population is affected by a rare disease and >50% affected are children (30% of whom will die before 5 years). There are 6,000-8,000 classified rare diseases - 80% are genetically based -...
Rare diseases (RD) are individually rare, although encompass a significant proportion of the population, affecting not only the individuals but also their families. In Brazil RD is defined by the Ministry of Health as a disorder that affects up to 65 individuals in 100,000, or 1.3 individuals ...
National Trump urges Americans to ‘bring God back into our lives’ and says ‘woke is gone-zo’ Updated: 13 minutes ago| By The Associated Press President Donald Trump said Thursday that he wants to root out “anti-Christian bias” in the U.S., announcing that he was forming a task ...
‘His whole body is swollen’: 2-year-old’s ‘allergies’ turn out to be rare kidney disease Updated: 1 hour ago| By Taylor Locke and Jordan Gartner Parents of a toddler are raising awareness of a rare kidney disease their child is facing. National New NASA photo shows ‘Bullseye’ gal...
Office of National Drug Control Policy, The Economic Costs of Drug Abuse in the United States, 1992-1998. Washington, DC Executive Office of the President2001; 5. Degenhardt LHall WLynskey M Alcohol, cannabis and tobacco use among Australians: comparisons of their associations with other drug us...
BMC Public Health (2021) 21:2284 https://doi.org/10.1186/s12889-021-12364-6 RESEARCH Open Access A critique of the English national policy from a social determinants of health perspective using a realist and problem representation approach: the 'Childhood Obesity: a plan ...
Accessed March 23, 2021. https://report.nih.gov/funding/categorical-spending/rcdc-process 38. Varmus H. Evaluating the burden of disease and spending the research dollars of the National Institutes of Health. N Engl J Med. 1999;340(24):1914-1915. doi:10.1056/NEJM199906173402411 ...
During the COVID-19 pandemic a country-wide lockdown policy was enforced in Thailand which stipulated that anaesthesiologists wear personal protective equipment, powered air purifying respirator, or goggles and surgical/N95 mask during the intubation procedure. Thus, an anaesthesiologist’s vision is...
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b)Gap Between the Ambition and Reality in Rare Diseases Product Reimbursement NHSA endeavors to include rare disease drugs which were not listed previously. In 2021, BioGen’s Spinraza for SMA (Spinal Muscular Atrophy) was included in the 2021 NRDL by offering a 95% discount, ...