1. The National Organization for Rare Disorders was established in 1983 by individuals and families with rare diseases. 国家罕见病组织由个人和有罕见病患者的家庭一同在1983年建立[11][12]。 article.yeeyan.org 2. National Organization for Rare Disorders, NORD 美国罕见疾病组织 blog.sina.com.cn©...
MedicalThe National Organization for Rare Disorders. Tarlov Cysts [internet].2012, June [citado el 7 de Nov. de 2014]. Disponible desde: http://www.National Organization for Rare Disorders (NORD). http://www.rarediseases.org/docs/NewsletterFall2010.pdf (accessed January 8, 2012)....
The National Organization for Rare Disorders announced three new grant funding opportunities related to the following rare diseases: Arteriovenous Malformation, Levy-Yeboa Syndrome, and Megacystis Microcolon Intestinal Hypoperistalsis Syndrome.
recognizing that a number of healthcare and knowledge issues are common to all rare diseases in spite of the wide variety of their clinical manifestation, has recently initiated the promotion of national plans and comprehensive strategies for improving the provision of care to rare disease patients....
The National Organization for Rare Disorders (NORD) is an American non-profit organization aiming to provide support individuals with rare diseases by advocating and funding research, education, and networking among service providers. It was founded in 1983 by Abbey Meyers, along with individuals with...
The French National Plan for Rare Diseases and the National reference centre for rare diseases: which impact on daily practice in neurology?oral conditiondepressiongray matter volumeasymptomatic cerebrovascular diseaseperiodontitisThe Re...
The Office of Rare Diseases Research (ORDR) at the USA National Institutes of Health (NIH) has attempted to meet many of these needs in collaborative efforts with the research Institutes and Centers of NIH and other partners in the private and public sectors in the USA and around the world...
Neglected Diseases National Institutes of Health Announces New Program To Develop Therapeutics For Rare And Neglected DiseasesNational Institutes of Health Announces New Program To Develop Therapeutics For Rare And Neglected DiseasesGeoffrey Spencer
ObjectiveTo describe the experiences of Australian paediatricians while caring for children with rare diseases, and their educational and resource needs.DesignA brief online survey was developed and deployed to a representative sample of 679 paediatricians from the Australian Paediatric Surveillance Unit data...
Springer 掌桥科研 Semantic Scholar dx.doi.org NCBI 查看更多 相似文献 引证文献Drug development for orphan diseases in the context of personalized medicine Orphan diseases are diseases that are found in less than 200,000 patients in the United States, which is the cutoff point for the number of ...