MedicalThe National Organization for Rare Disorders. Tarlov Cysts [internet].2012, June [citado el 7 de Nov. de 2014]. Disponible desde: http://www.National Organization for Rare Disorders (NORD). http://www.rarediseases.org/docs/NewsletterFall2010.pdf (accessed January 8, 2012)....
1. The National Organization for Rare Disorders was established in 1983 by individuals and families with rare diseases. 国家罕见病组织由个人和有罕见病患者的家庭一同在1983年建立[11][12]。 article.yeeyan.org 2. National Organization for Rare Disorders, NORD 美国罕见疾病组织 blog.sina.com.cn©...
G. (2003). The National Organization for Rare Disorders and the Experiences of the Rare Disease Community. Retrieved from www.rarediseases.org National Organization for Rare Disorders. (2003). NORD guide to rare disorders. Philadelphia: Lippincott Williams & Wilkins. Google Scholar Download ...
The National Organization for Rare Disorders (NORD) is an American non-profit organization aiming to provide support individuals with rare diseases by advocating and funding research, education, and networking among service providers. It was founded in 1983 by Abbey Meyers, along with individuals with...
recognizing that a number of healthcare and knowledge issues are common to all rare diseases in spite of the wide variety of their clinical manifestation, has recently initiated the promotion of national plans and comprehensive strategies for improving the provision of care to rare disease patients....
Download citation Received07 July 2024 Accepted04 September 2024 Published26 September 2024 DOIhttps://doi.org/10.1007/s12687-024-00732-9 Keywords Rare diseases Public policy Public health Brazil
The French National Plan for Rare Diseases and the National reference centre for rare diseases: which impact on daily practice in neurology?oral conditiondepressiongray matter volumeasymptomatic cerebrovascular diseaseperiodontitisThe Rela...
Sci- ence has clearly outpaced the system of regulatory oversight and has highlighted the need for new approaches to clinical investigation. Rare genetic diseases are among those most affected by a poorly organized system. Improvement will require that as many patients as possible are entered into ...
The Office of Rare Diseases Research (ORDR) at the USA National Institutes of Health (NIH) has attempted to meet many of these needs in collaborative efforts with the research Institutes and Centers of NIH and other partners in the private and public sectors in the USA and around the world...
Neglected Diseases National Institutes of Health Announces New Program To Develop Therapeutics For Rare And Neglected DiseasesNational Institutes of Health Announces New Program To Develop Therapeutics For Rare And Neglected DiseasesGeoffrey Spencer