National Plan for Rare Diseases and its ImplementationWierzba, JolantaEuropean Journal of Translational & Clinical Medicine
The Relationship between Oral Health and Brain Function WATANABE Makoto 日本歯科医学会誌 = Journal of the Japanese Association for Dental Science : JJDS (28), 60-63, 2009-03-31Maud GancelWassilios MeissnerFrançois Tison日本歯科医学会誌...
Neglected Diseases National Institutes of Health Announces New Program To Develop Therapeutics For Rare And Neglected DiseasesNational Institutes of Health Announces New Program To Develop Therapeutics For Rare And Neglected DiseasesGeoffrey Spencer
- Maedica - a Journal of Clinical Medicine 被引量: 4发表: 2010年 Developing guidelines for ultrarare rheumatic disorders: a bumpy ride recommendations for autoinflammatory disorders with the goal of finding solutions that facilitate the development of guidelines for ultrarare diseases in the ... D...
23-25 May 2012IntroductionTo improve health and well-being of people with rare dis-eases and to implement the Council Recommendation ofthe European Union on rare diseases the German FederalMinistry of Health, in cooperation with the FederalMinistry of Education and Research and the National Alli-...
recognizing that a number of healthcare and knowledge issues are common to all rare diseases in spite of the wide variety of their clinical manifestation, has recently initiated the promotion of national plans and comprehensive strategies for improving the provision of care to rare disease patients....
中国国家罕见病注册登记系统(National Rare Diseases Registry System of China,NRDRS)是依托国家重点研发计划精准医学专项"罕见病临床队列研究"项目(项目编号:2016YF... - 《科技导报》 被引量: 0发表: 2017年 Innovation in Informatics to Improve Clinical Care and Drug Accessibility for Rare Diseases in China...
a) Grant priority access for innovative drugs. During the expert review stage, the NHSA actively instructed experts to focus on the evaluation of the candidate drugs’ innovation and clinical value. If such drugs meet the access criteria, they will pass the preliminary review automatica...
We conceptualized the data as a multi-level data structure in which persons were nested within countries, and we analyzed the data with a series of multi-level models (MLM) using the programme HLM71 (see ref. 51 for a description of using MLM to analyze data from multinational studies). ...
Whereas the majority of clinical research has been transactional in nature, with uni- directional data sharing from the individual to the study, the PMI-CP seeks true partnership between participants and researchers" (emphasis added) [50]. Building that partnership, the Working Group goes on to ...