The National Human Genome Research Institute is delighted to be partnering with the Office of Rare Diseases to establish this center."ORD Director Stephen C. Groft, PharmD, who currently is on detail as executive director of the White House Commission on Complementary and Alternative Medicine ...
T Kodama,S Takemura - 《Journal of the National Institute of Public Health》 被引量: 5发表: 2010年 Defining rare diseases in China China has the world's largest population of people with rare diseases. However, defining rare diseases remains a challenge in China. Over the past few deca.....
Office of Rare diseases researchlt;pgt;lt;stronggt;Introductionlt;/stronggt;: Rare diseases present unique challenges to meet the numerous and varied needs of the rare diseases community and it is required to identify and address these needs. Significant financial and personnel resources are ...
recognizing that a number of healthcare and knowledge issues are common to all rare diseases in spite of the wide variety of their clinical manifestation, has recently initiated the promotion of national plans and comprehensive strategies for improving the provision of care to rare disease patients....
National Institute of Allergy and Infectious Diseases, NIH: Volume 2: Impact on Global Health covers the scientific aspects of the entire portfolio of NIAI... V Georgiev,K Western,J Mcgowan,... - 《Clinical Infectious Diseases》 被引量: 66发表: 2009年 Information Security Continuous Monitoring...
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The French National Plan for Rare Diseases and the National reference centre for rare diseases: which impact on daily practice in neurology?oral conditiondepressiongray matter volumeasymptomatic cerebrovascular diseaseperiodontitisThe Rela...
ABSTRACT. The National Institute of Neurological Disorders and Stroke and the Office of Rare Disorders sponsored a workshop on perinatal and childhood stroke in Bethesda, Maryland, on September 18 and 19, 2000. This was an international workshop to bring together experts in the field of perinatal...
National Rare Diseases Registry System (NRDRS) – China's First Nation-Wide Rare Diseases Demographic Analyses China has made remarkable broad and system wide progress in serving the needs of its people living with rare diseases, especially over the last 5 years. Th......
National Institute for Human Genome Research (NHGRI), NIH; Nancy Green, MD, March of Dimes Birth Defects Foundation; Stephen Groft, PharmD, Office of Rare Diseases, NIH; James Hanson, MD, NICHD, NIH; Michael Katz, MD, March of Dimes; Donna Levin, JD, Massachusetts Department of Health; ...