000 Americans each year, targeting and damaging the nerve cells in your brain and spinal cord. While there is no cure for this disease, medical marijuana for amyotrophic lateral sclerosis has helped slow its progression for patients. Learn more about ALS ...
Patients benefit from a strong sense of shared experiences in a cooperative and symbiotic environment. Information and communication technologies have extended the capabilities of social support groups, enabling patients to share information across barriers of geography and time, benefitting especially those...
For the study, researchers analyzed the genetics of 791 people with ALS and 757 healthy people, looking for the presence of 153 genes associated with degenerative brain diseases. About 18% of the ALS patients carried at lease one high-impact gene variant, and 11% had a mutation that hadn’t...
Where can I get more information on ALS? For more information on neurological disorders or research programs funded by the National Institute of Neurological Disorders and Stroke, contact the Institute’s Brain Resources and Information Network (BRAIN) at: ...
A blood test looking for neurofilament light chain proteins accurately identified ALS patients more than 80% of the time, researchers said. The test also can help predict survival for people with ALS, results show. Within a year, more than 40% with neurofilament light chain proteins below a ce...
Patients with advanced ALS require electrical equipment to maintain life, and are often difficult to transport to evacuation centers. As such, preparedness for disasters is an especially important issue for patients with ALS. However, few reports have investigated disaster preparedness in this cohort. ...
There is no cure for ALS yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline. Explore treatment Subscribe to our newsletter Get regular updates to your inbox. ...
These databases collect large amounts of information on patients over time. Scientists use these data in studies into a condition’s origins and progression in hopes of shedding new light on both causes and prognoses. Such studies include natural history, or what happens if there is no treatment...
“By having this information, it helps patients like me have a sense of hope and gives us the opportunity to put an action plan together,” Dolan said. “The app shows location of care and enables[pALS]to provide feedback to the care providers; my hope is that it will become a common...
Patients should consider the option of using a mechanical respirator if they become unable to breathe on their own. Artificial ventilation can help some patients survive for years. But many patients choose not to be kept alive in a state of total paralysis. ...