PatientsLikeMe is making outcomes data from 14,000 people living with amyotrophic lateral sclerosis available to the research community through its collaboration with the hospital's Neurological Clinical Research Institute.
"For patients in the later stages of the disease, currently available treatments primarily involve life-sustaining measures, including assisted breathing and feeding, to maintain survival," he said, adding that currently there is still no effective way to cure ALS. This is why the joint laboratory...
Patients Creating Self-Help on the Internet -- Lessons for Future Design of Internet Based Healthcare Resources This paper reports from an ongoing research work on patients?? use of the Internet for medical information with special focus on how this can inform the de... U Josefsson - Hawaii ...
Ankle-Foot Orthosis (AFOs): Your Questions, Tips and Shared Resources Johnny5replied2 weeks, 3 days ago18 Members·38 Replies Chelation Therapy? Dagmarreplied3 weeks ago9 Members·19 Replies What is on your bucket list for 2025 replied3 weeks, 3 days ago1 Member·0 Replies ...
Online environments also, in some cases, provide a measure of anonymity and opportunity for people to disclose sensitive health information without embarrassment while also allowing them access to a wider variety of information resources.doi:10.1002/meet.2009.1450460335Mia Liza A Lustria...
Patients are ultimately unable to speak, swallow, walk and breathe. The cause is unknown. Medication and therapy can slow ALS and reduce discomfort, but there's no cure. Courtesy of ALS of Michigan ALS of Michigan was founded to dedicate time and resources to helping people with ALS. ...
Ankle-Foot Orthosis (AFOs): Your Questions, Tips and Shared Resources Johnny5 replied 3 weeks, 2 days ago 18 Members · 38 Replies Living With ALS Chelation Therapy? Dagmar replied 4 weeks ago 9 Members · 19 Replies Living With ALS What is on your bucket list for 2025 replied 1...
Funding agencies and disease organizations: Resources and recommendations to facilitate ALS clinical research 来自 国家科技图书文献中心 喜欢 0 阅读量: 13 作者:David A. Chad,Sanjay Bidichandani,Lucie Bruijn,J. Donald Capra,Brian Dickie,John Ferguson,Denise Figlewicz,Melissa Forsythe,Petra Kaufmann,...
This research presents a dataset consisting of electroencephalogram and eye tracking recordings obtained from six patients with amyotrophic lateral sclerosis (ALS) in a locked-in state and one hundred seventy healthy individuals. The ALS patients exhibit
TIGLUTIK is an oral suspension (mildly thick liquid) formulation of riluzole. It was developed specifically to meet the needs of people with ALS. Since TIGLUTIK is approved for use throughout all stages of ALS, patients can start taking it as soon as they are diagnosed with ALS. TIGLUTIK...