New York City— Brian Jeansonne talks to the world about his journey with ALS through TikTok videos, which the 46-year-old makes with his family and caregivers.He began recording them when he was still able to speak on his own."I'm married for almost 18 years, have five kids," Jean...
Alcohol use and readiness to change after spinal cord injury Rehabil.; 79:1110-5 (2011) Depression and QOL in patients with ALS: how do self-ratings and ratings by relatives differ? Qual Life Res.; 20(4):... CH Bombardier,CT Rimmele - 《Archives of Physical Medicine & Rehabilitation》 ...
The 1990s decade has seen the testing of treatments to slow disease progression in patients with ALS. Two such treatments (riluzole and myotrophin) have shown minimal or modest efficacy. Of these, riluzole has been approved for marketing in the United States, in Europe and in other countries....
As in other online communities, members of PatientsLikeMe offer one another support based on their own personal experience and advise each other on both medical issues and how to improve day-to-day life. Unique to this patient platform, members tailor questions and consults by referencing ...
The Affordable Care Act has prohibited insurance companies from denying coverage to patients with preexisting conditions and has allowed children to remain on their parent's insurance plan until they reach the age of 26.22 In addition to these changes, the ACA established the federal Health Insuranc...
Understanding QoL, and its underlying meaning for patients, is particularly important in diseases for which there is no cure to date, such as Huntington’s disease (HD). HD is a rare, autosomal dominant neurodegenerative disease resulting from a CAG repeat expansion in the huntingtin (HTT) gene...
To develop effective drugs is the only way to save ALS patients. However, the intense effort required, which is unprofitable for so rare an illness, makes it a mission almost impossible. It usually takes 10-15 years to complete the research cycle for a new drug and the cost is $1-3bill...
I agreed to supply these doctors with all the equipment as well as the detailed procedure David and I used. I agreed to provide practically everything. The doctors would provide the patients for the study (patients they already had), and they would document and publish the results—whatever ...
Scientists have uncovered further evidence about the abilities of PQQ (pyrroloquinoline quinone) to help support the brain. Generating excitement are three distinct ways that PQQ reducesbrain agingincluding: Improvedbrain blood flow1,2 Reducedneurotoxicity3-6 ...
Essentials of Advanced Life Support (ALS) 3-4 hrs343 learners You Will Learn How To Identify the clinical signs of a cardiac arrest and expl... Recognize the fundamental concepts of basic life support... Explain the importance of high-quality cardio...Read More ...