Although spouses play a major role in managing the care of persons affected with Huntington disease (HD), often at the price of subordinating their own aspirations and needs, little or no professional attention has been given to them in the HD literature, Such factors as secrets kept from the...
ObjectivesThis study aims to provide more insight into possible barriers and facilitators caregivers of people with Huntington's disease (HD) encounter, and what their needs and wishes are regarding a remote support program.MethodsIn total, 27 persons participated in four focus group interviews. ...
Through case studies of patients in the United States recently diagnosed with Huntington's disease, I demonstrate that the particularities of each individual's first-person perspective are extremely relevant to an account of their moral experience. I contrast this approach to the poststructural account...
Background Chorea, rigidity, dystonia and muscle weakness are characteristic defects of Huntington's disease (HD). These motor defects underlie the gradual loss of function and mobility for people with HD as the disease progresses. Provision of an individualised exercise programme is one of the ...