Comparative analysis of Cystic Fibrosis Registry data from the UK with USA, France and Australasia. J Cyst Fibros 2005; 4: 115-122.McCormick J, Sims EJ, Green MW, Mehta G, Culross F, Mehta A: Comparative analysis of cystic fibrosis registry data from the uk with usa, france and ...
The authors thank people with cystic fibrosis and their families for consenting to their data being held in the UK Cystic Fibrosis Registry, and NHS teams in CF centres and clinics for the input of data into the Registry. The UK Cystic Fibrosis Registry is sponsored and coordinated by the UK...
Introduction and objectives The UK Cystic Fibrosis (CF) registry has been in its current form since 2006 offering annual review data comprising of detailed demographic and clinical information on 99% of the UK CF population (>10,000 individuals). Whilst widely accepted that FEV1 and BMI are well...
Up-to-date and projected estimates of survival for people with cystic fibrosis using baseline characteristics: A longitudinal study using UK patient registry data 来自 掌桥科研 喜欢 0 阅读量: 9 作者: Keogh, Ruth H.Szczesniak, RhondaTaylor-Robinson, DavidBilton, Diana 摘要: Background: Cystic ...
The objective was to determine the composition of the Cystic Fibrosis (CF) Population attending specialist UK CF centres in terms of age, gender, age at di... J Mccormick,MW Green,G Mehta,... - 《European Journal of Human Genetics》 被引量: 148发表: 2002年 UK Renal Registry 15th Annual...
Aim: To explore the health risk of living near permitted composting sites (PCSs) on disease severity in children andadults with cystic fibrosis (CF) across the UK.Methods: A semi-individual cross-sectional study was used to examine the risk of disease severity in people withCF (pwCF) ...
More details about the UK Biobank can be found in the registry online protocol: http://www.ukbiobank.ac.uk. The North West Multi-centre Ethics Committee granted ethical approval to access data from the UK Biobank, and all participants provided written informed consent. To define chronic pain,...
Patients with cystic fibrosis and bronchiectasis [8, 9, 10] constitute a special group. They often require 10–14 days of parenteral antipseudomonal treatment on a recurrent basis. Once venous access is assured, many of these patients may be treated at home when chest infections occur. Infectio...
A prospective pilot study of home monitoring in adults with cystic fibrosis (HOME-CF): protocol for a randomised controlled trial Home monitoring has the potential to detect early pulmonary exacerbations in people with cystic fibrosis (CF), with consequent improvements in health outco... J Choyce...
This chapter describes our longitudinal registry studies examining the effect of social deprivation on longitudinal clinical outcomes, healthcare use and employment opportunities in people with cystic fibrosis (CF). Because CF is genetically determined,