Cystic Fibrosis Research Trustdoi:10.1136/bmj.288.6420.870British Medical Journal Publishing GroupBMJ GroupBritish Medical Journal
CF Registry in UK Collecting Data on COVID-19 Infections Apr 9, 2020 Charities call on supermarkets to support ‘extremely vulnerable’ people Feb 3, 2020 Cystic Fibrosis Trust Adds 9 UK Centers to its Clinical Trials Network Learn more by requesting a demo ...
Cystic fibrosis (CF) affects ~100,000 people globally, with >10,000 on the UK’s patient registry (https://www.cysticfibrosis.org.uk/the-work-we-do/uk-cf-registry/reporting-and-resources). For decades regarded as a fatal inherited disease of childhood, prognosis has improved greatly so th...
Cystic Fibrosis Trust Hypothermia in stroke: EuroHYP moves from rats to man Earlier today the BBC reported that European Stroke Research Network for Hypothermia (EuroHYP) has announced the launch of a major clinical trial – involving 1,500 patients in 15 centers across Europe – to evaluate ...
We also thank the UK Cystic Fibrosis Trust and the Registry Steering Committee for access to anonymized UK Cystic Fibrosis Registry data. We thank Hima Daby, Gajanan Natu and Eric Johnson of the SAHSU database team for technical support. We are grateful to the UK Environment Agency, Natural ...
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Experiments were conducted using retrospective longitudinal data from the UK cystic fibrosis Registry; a database sponsored and hosted by the UK cystic fibrosis Trust25. The registry comprises a list of annual follow-up variables for individual CF patients that includes demographics, genetic mutations,...
Cystic Fibrosis Foundation Patient Registry 2021 Annual Data Report Bethesda; Cystic Fibrosis Foundation: Bethesda, MD, USA, 2022. Hamosh, A.; FitzSimmons, S.C.; Macek, M.; Knowles, M.R.; Rosenstein, B.J.; Cutting, G.R. Comparison of the clinical manifestations of cystic fibrosis in bla...
Effect of genotype on phenotype and mortality in cystic fibrosis: A retrospective cohort study. Lancet 2003, 361, 1671–1676. [Google Scholar] [CrossRef] Cystic Fibrosis Trust. UK Cystic Fibrosis Registry Annual Data Report 2019. Available online: https://www.cysticfibrosis.org.uk/sites/default...
What is the life expectancy of someone with cystic fibrosis? People with CF continue to live longer and healthier lives. The Cystic Fibrosis Foundation Patient Registry collects data from patients who receive care for CF at CF Foundation-accredited care centers and have agreed to share their health...