While there have been significant improvements in diagnosing and treating children with rare diseases, the same is not true for adults. A particular problem is the transition from children's care to adult services, which is often difficult." Professor Donaldson 鈥BMJ...
aok are you alone? 好单独是您?[translate] a爱护所有的植物 Cherishes all plants[translate] asignificant numbers of people with rare diseases might go untreated in the absence of redistribution. 重大人数以罕见的疾病也许是未经治疗在没有再分配时。[translate]...
Sobi is a specialised international biopharmaceutical company transforming the lives of people with rare diseases. Learn more about us here.
Together with the Federal Ministry for Education and Research and the ACHSE, the Federal Ministry for Health founded the National Coalition for People with Rare Diseases (NAMSE) in 2010 in order to work out the first national action plan for people with rare diseases. All stakeholders of the ...
"People with rare diseases often have poorer health outcomes generally, so we wanted to find out what impact the COVID-19 pandemic has had. From our study we know that during the early months of the pandemic, people with these diseases were more likely to die than the general population. ...
Breaking news, inclusion, fatherhood, quality of life for people with rare diseases, decision‐making and team formulation: Issues for professional practicedoi:10.1111/bld.12252BobTheGatesTheWileyBritish journal of learning disabilities
Background: The aim of this study was to collect information on oral health-related quality of life (OHRQoL) in people with rare diseases.Methods: A questionnaire comprising free text questions and the German version of the standardized Oral Health Impact Profile-14 (OHIP-14) questionnaire on OH...
One of the study's limitations is that it examined data from only one center specializing in a single rare disorder. Nonetheless, Bleyer said, the study highlights the importance of the internet as a resource for people with rare conditions. ...
根据The Internet has also become an important source of emotional support for people with health problems.和 The rise of social networking has made it easier for people with rare diseases to connect with each other and feel less alone.可知在网上搜寻健康信息给得怪病人的一精神安慰,故正确答案为B...
【题目】AI can identify rare genetic disordersPeople with genetic syndromes(基因 传综合症) sometimes have revealing facial features , but using them to make a quick and cheap diagnosis can be tricky when there are hundreds of possible conditions they may have .A new neural(神经的) network that...