Aim: To investigate the experiences of dysphagia from the perspective of people diagnosed with Motor Neurone Disease. Method: This study employed Interpretative Phenomenological Analysis to investigate the experiences of dysphagia in ten people with Motor Neurone Disease who participated in individual, ...
A lack of palliative care provision for people with motor neurone disease (MND) following diagnosis can cause emotional distress and, in extreme cases, lead to people experiencing suicidal thoughts, new research shows. The research review, conducted by the University of York concludes thatpalliative ...
Occupational therapists should consider all components of wellbeing for people with motor neurone disease and not physical disability alone. A better understanding of motor neurone disease and an awareness of the service needs important to this client group are necessary to improve the quality of care...
Motor neuron disease (MND) is a fatal, progressive neurodegenerative disease that causes progressive weakening and wasting of limb, bulbar, thoracic and abdominal muscles. Clear evidence-based guidance on how psychological distress should be managed in p
Burdened by obligation: Recognising the caring roles of people with motor neurone disease 来自 EBSCO 喜欢 0 阅读量: 26 作者: Foley,G.摘要: The term `carer burden' has traditionally been associated with the caring experiences offamily/significant others and of healthcare providers. In palliative ...
“People can become really frustrated when trying to communicate, so if this app can make things easier that’s a really good thing,” says Matthew Hollis from theMotor Neurone Disease Association. There are currently limited options for people with ALS to communicate. The most common is t...
The current qualitative study was designed to evaluate the coping strategies of people living with a chronic progressive neurological illness and their carers. The neurological illnesses were Huntington's disease, motor neurone disease, multiple sclerosis and Parkinson's disease. Participants included 15 ...
Palliative care involves the complete, holistic care of people with progressive illness and their families. People living with motor neurone disease (MND) ... RA Hughes,A Sinha,I Higginson,... - 《Health Soc Care Community》 被引量: 137发表: 2010年 Living with motor neurone disease: lives,...
The Northern Ireland Branch of theMotor Neurone Disease Associationaims to provide the best possible support to local people with MND, their families and carers. MND is the name given to a group of related diseases affecting the motor neurones in the brain and spinal cord. It affects people ...
Family carers provide the majority of home-based care for people with motor neurone disease (MND). Carers' need for, and use of, support services are not fully understood; this study aimed to explore, from a qualitative perspective, the views of current and former family carers of people wit...