In May 2006, Diane was given the diagnosis of motor neurone disease. We had never heard of the disease before. We were both devastated, even more so when the specialist told us that Diane might die within three months. We came out of the specialist's office in a state of disbelief and...
Background: Motor neurone disease is a neurodegenerative disease that leads to progressive disability - and eventually death - within 2-3 years. Objective: This article describes the role of the general practitioner in caring for patients with motor neurone disease. Discussion: The diagnosis of motor...
“The ALS patient community is rightly impatient for a range of new disease modifying approaches for such a devastating disease. Co-development with NATA brings a rapid, clear development path for one such novel drug programme”, said Steve Gardner, C...
An advance decision to refuse treatment made by a man with motor neurone disease, who communicated only through eye movements, is valid and his life can "peacefully end," a judge has ruled at the Court of Protection in London. Mrs Justice Theis said she was "entirely satisfied" that he ...
The patient experience of spasticity in motor neurone diseasedoi:10.7490/F1000RESEARCH.1097278.1Kristijonas MilinisCarolyn Young
motor neurone diseasecarer burdendisabilityenvironmental factorsquality of lifeAims: To compare patient- and carer-reported disability in motor neurone disease (MND) using the International Classification of Functioning, Disability and Health (ICF); and to describe carer burden,...
Introduction Motor Neurone Disease (MND), is a terminal, progressive neurodegenerative disease of the central nervous system. The most common form of MND is amyotrophic lateral sclerosis (ALS) involving both upper and lower motor neurones (UMNs, LMNs). Less common are primary lateral sclerosis (...
Extracts prepared from skeletal muscle biopsies of motor neurone disease (MND) patients do not differ significantly from non-MND patient muscle extracts in their ability to boost the parameter levels or survival of the cultures. The results show no evidence that neuronotrophic factors are lacking ...
Multidisciplinary team working in motor neurone disease patient and family carer views British Journal of Neuroscience Nursing Vol 7, No 4Mary O’BrienWhiteheadBarbara JackJ Douglas Mitchell
Stavroulakis T, Baird WO, Baxter SK, Walsh T, Shaw PJ, McDermott CJ. The impact of gastrostomy in motor neurone disease: challenges and benefits from a patient and carer perspective. BMJ Support Palliat Care 2016;6: 52-59.Stavroulakis, T., et al., The impact of gastrostomy in motor ...