Design: A point prevalence study assessing patient-reported symptoms using a modified IPOS-Neuro assessment tool, incorporating 41 symptom items. Setting/participants: Patients with motor neurone disease attending the State-wide Progressive Neurological Disease Service or inpatient unit...
Background: Motor neurone disease is a neurodegenerative disease that leads to progressive disability - and eventually death - within 2-3 years. Objective: This article describes the role of the general practitioner in caring for patients with motor neurone disease. Discussion: The diagnosis of motor...
Patients' health-related quality-of-life and health state values for motor neurone disease/amyotrophic lateral sclerosis Motor neurone disease (MND) has a severe impact on patient quality of life, especially in later stages of the disease. This study assesses the health-relat... C.,Green,G.,...
An advance decision to refuse treatment made by a man with motor neurone disease, who communicated only through eye movements, is valid and his life can "peacefully end," a judge has ruled at the Court of Protection in London. Mrs Justice Theis said she was "entirely satisfied" that he ...
The patient experience of fatigue in motor neurone disease. Front Psychol. 2013;4:788.Gibbons, C. J., Thornton, E. W., and Young, C. A. (2013). The patient experience of fatigue in motor neurone disease. Front. Psychol. 4:788. doi: 10.3389/fpsyg.2013.00788...
Patient decision-making in motor neurone disease: The views of health professionalsdoi:10.3109/17482968.2011.615496Hodgen, AGreenfield, DNugus, PKiernan, M
SUBJECTS--124 patients with motor neurone disease cared for by the hospice between January 1980 and November 1990. MAIN OUTCOME MEASURES--Patient profile; functional status; symptom control and use of opioids; insight; mode and management of death. RESULTS--124 patients (67 women, 57 men) had...
( 2011b ), “ Patient/carer perception of disability in motor neurone disease and carer coping ”, International Journal of Therapy and Rehabilitation , Vol. 18 No. 10, pp. 568 ‐ 78 . [] []Ng, L., Kee, K., Amatya, B. and Khan, F. (2011b), ``Pat...
Multidisciplinary team working in motor neurone disease patient and family carer views British Journal of Neuroscience Nursing Vol 7, No 4Mary O’BrienWhiteheadBarbara JackJ Douglas Mitchell
O'Brien, M., Jack, B. & Douglas Mitchell, J. Multidisciplinary team working in motor neurone disease: patient and family carer views. British Journal of Neuroscience Nursing 7, 580-585 (2011).O'Brien MR, Whitehead B, Jack BA, Mitchell JD: Multi- discipl...