蛋白质组学数据可通过蛋白质组学数据共享库(https://pdc.cancer.gov/pdc/cptac-pancancer)访问(图1)。基因组和转录组数据可通过基因组学数据共享库(https://portal.gdc.cancer.gov)(图2)和癌症数据服务 网站(https://dataservice.d...
NIH REVAMPS POLICY ON GENOMIC DATA.The article reports on the genomic data-sharing policy released by the U.S. National Institutes of Health (NIH) which will broaden privacy protections for participants of research and will encourage timely sharing of data.A....
我国目前最大的医药卫生科学数据管理与共享服务系统为国家人口与健康科学数据共享平台(Population Health Data Archive)。该平台自2004年始建至今,数据总量已达到1.11PB,开展科研项目1073个,与多个国家建立了科学数据共享,涵盖基础医学、临床医学、公共卫生、中医药...
摘要: The National Institutes of Health today announced in Nature that it has reached an understanding with the family of the late Henrietta Lacks to allow biomedical researchers controlled access to the whole genome data of cells derived from her tumor, commonly known as HeLa cells....
Last year, the NIH made genomic data about the coronaviruspublicly accessible to researchers in the cloud, allowing quick access at no cost. ItsSTRIDES Initiativeallows NIH to explore the use of cloud environments to streamline NIH data use by partnering with commercial providers, providing cost-eff...
to GWAS data based on participants' informed consent. dbGaP has provided 2,221 investigators access to 304 studies, resulting in 924 publications and significant scientific advances. Following on this success, the 2014 Genomic Data Sharing Policy will extend the GWAS Policy to additional data types....
The National Institutes of Health's (NIH) eMERGE Network, a national consortium formed to combine DNA biorepositories with electronic medical record (EMR) systems for research, will soon include pediatric data.The network, which now includes adult biorepositories at seven universities and healthcare ...
No abstract is available for this article.doi:10.1002/ajmg.a.34340Deborah,LevensonJohn Wiley & Sons, Ltd.American journal of medical genetics. Part A
NoneAmerican Journal of Medical Genetics Part ANIH policy supports broader sharing of genomic data, strengthens informed-consent rules: research participants must give consent for secondary sharing, even if data are de-identified. Am J Med Genet A. 2015;167a:viii-ix....
1Data Sharing Policy1 Introduction ... 12 Request Procedure ... 13 Data Abstractions ...