PRE-CONCEPTION COUNSELLING FOR PARENTS WHO HAVE A CHILD WITH CYSTIC FIBROSIS Maurice,Super,and,... - 《Lancet》 被引量: 4发表: 1986年 Parenting Stress Reduces the Effectiveness of Early Teaching Interventions for Autistic Spectrum Disorders This community-based study examined the influence of early...
Cystic Fibrosis Canada (CF Canada) is a productive model of collaboration between families and the scientific and medical communities. The impetus for this response to a rare and then poorly understood, inherited condition started with Doug and Donna Summerhayes who arranged a meeting for parents ...
Cystic fibrosis (CF) is an autosomal recessive genetic disorder, with both parents carrying a gene for the disease, that is caused by a mutation in the gene for the protein cystic fibrosis transmembrane conductance regulator (CFTR) present in the mucus-secreting cells of the body, primarily affe...
Cystic fibrosis (CF) is a hereditary and progressive genetic disorder that primarily affects the respiratory and digestive systems. This life-limiting condition results from a faulty gene that affects the production of a protein responsible for regulatin
Quality of Life was measured using the Cystic Fibrosis Questionnaire, family functioning by the Family Environment Scale (3rd edition), general psychopathology... JE Szyndler,SJ Towns,PPV Asperen,... - 《Journal of Cystic Fibrosis》 被引量: 103发表: 2005年 ANTIBIOTIC TREATMENT FOR CYSTIC FIBROS...
Discuss when to contact cystic fibrosis center personnel (eg, for acute pulmonary exacerbation or complications) with patients and parents, and be prepared to counsel families regarding the impact of the diagnosis on the emotional life of parents, siblings, and members of the extended family. ...
Pubertal development may be delayed in patients with cystic fibrosis [15]. A standardized method of assessment of pubertal stage should be performed annually from 10 years of age. Estimation of skeletal age should form part of the assessment of any child with stunting or pubertal delay. Bone min...
Cystic fibrosis (CF) is the most common life-threatening, recessively inherited disease in the UK. The treatment of CF is complex because of the multi-system involvement. It is often intrusive and may take a large portion of the day leading to difficulties in a predominantly young, mobile ...
As a parent of a young child with Cystic Fibrosis, I very much see me and my daughter as a team. So one thing that startled me in the movie was the almost non-existent role of the parents. While this was of course done to focus you on the doomed relationship that mattered to the ...
Connecting theory and practice in mentor preparation: mentoring for the improvement of teaching and learning This study examines the theory‐and‐practice connection model in mentor preparation in the context of two mentor preparation programmes in Hong Kong. The ... S.Y.F. Tang,P.L. Choi - ...