Families were invited for open-ended interviews regarding their experiences with the medical care of a child with T 13/18 over the past 5?years. Seven of 33 invited families were surveyed; those who had spent more than 40?days in the hospital were most likely to accept the invitation (OR...
Trisomy 18, also called Edwards syndrome, is a serious disorder with up to 70% of first trimester affected fetuses being spontaneously lost during pregnancies. Among those born alive, half die within a week with only 5% surviving the first year. All have serious medical and developmental problems...