A discussion of the factors, including stigma, the need for anonymity and a relationship to criminalization, which have hampered the creation of patient advocacy organizations for patients with substance use disorders, is presented.EBSCO_AspAlcoholism & Drug Abuse Weekly...
Patient Advocacy: Here’s Why You Need to Research Your Doctor Before You Go May 27, 2018 by Jake Hawkins Share Article Patient advocacy is extremely important, no matter your level of knowledge on healthcare. You should be able to advocate for yourself and understand what is going on ...
One more noteworthy endorsement, with regards to this whole website and all of my books, submitted by a London physician specializing in chronic pain, medical education, and patient-advocacy (that’s a link to his excellent blog): I’m writing to congratulate and thank you for your impressive...
Team Gluten-Free is a fundraising program that provides a way for non-athletes and athletes to raise awareness and get information about celiac disease to the public. They also raise funds for research, education, and advocacy. Contact the Celiac Disease Foundation and have them sponsor a maratho...
patient advocacy groups to join the chorus. “I don’t buy the argument that high prices are needed to support R&D,” Marc Boutin, CEO of the National Health Council, said. “It’s an easy sound bite. This constant escalation in prices that has gone well beyond inflation is just not ...
Outstandingdoubts about Leqembi and related drugshave given urgency to efforts to monitor patient experiences.CMS is requiring Leqembipatients to be entered into a registry that tracks their outcomes. The agency has established a registry, but the Alzheimer's Association, the leading advocacy group ...
Patient Advocacy PharmacyChecker believes that drug prices need to come down in America.We advocate for consumersas part of our work with PharmacyChecker, and through other organizations, by participating in the federal rule-making process, educating policy-makers, and, mostly, helping you afford th...
Patient advocacy groups that represent patients’ rights and have a hand in promoting the development of novel treatments Why should I participate in a clinical trial? Participating in a clinical trial isn’t without risk factors and inconveniences: volunteers may experience mild to severe side effect...
Vicky Carr is a breast cancer survivor turned patient advocate for Susan G. Komen. As part of her role with the advocacy group, she counsels current patients about the various aspects of clinical trials. "I tell them that clinical trials are available to women at all stages of the breast...
One more noteworthy endorsement, with regards to this whole website and all of my books, submitted by a London physician specializing in chronic pain, medical education, and patient-advocacy (that’s a link to his excellent blog): I’m writing to congratulate and thank you for your impressive...