While living with any illness or disorder is a challenge for patients, families and caregivers, people with a rare disease have a harder time getting a diagnosis and treatment. It can often take years for a person to be properly diagnosed. These challenges extend to rare disease research and ...
What is a rare disease?
Rare diseases are difficult to diagnose because individually they occur so infrequently, and symptoms can be very complex.My researchandanother Australian studyshow it can take years to get the final correct diagnosis. Mosthealth professionalshave never diagnosed or cared for a person withosteogenesis ...
There is a practical definition, and what I would call an "official designation." The US Food and Drug Administration (FDA) defines a rare disease as occurring in less than 200,000 people in the United States. That means that as few as five people, or as many as 200,000, could have ...
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A uterine tumor resembling an ovarian sex-cord tumor (UTROSCT) is a very rare lesion with only 38 cases reported in the literature so far. Here, we show an... S, Hauptmann,B, Nadjari,J, Kraus,... - 《Virchows Archiv An International Journal of Pathology》 被引量: 0发表: 2019年 ...
What"s Rare Disease Day? 国际罕见病日介绍2016-02-29 21:05:49 看看新闻Knews综合关键词: RareDiseaseDay国际罕见病日Shanghai Live上海国际频道推荐视频 00:08 我驻泰使馆:泰方通报称中国公民王某已成功获救 时讯2天前 00:09 西藏日喀则市定日县发生6.8级地震 已有人员遇难 时讯2天前 00:06 外交部...
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736.According to Tu Youyou, the discovery of artemisinin was a team effort. 屠呦呦说,青蒿素的发现是团队共同努力的结果。 737.Upon hearing that she had been awarded the Nobel Prize, she said, “The honour is not j...