Around the world, rare diseases are identified and addressed differently. The European Union considers a disease rare if it affects no more than50 per 100,000 people. The World Health Organization, on the other hand, defines a rare disease as one that strikesfewer than 65 per 100,000people....
The European Union defines it as any disease that affects five or fewer people out of every 10,000. Whichever definition you use, the answer is the same: Thousands of rare diseases affect millions of people every day. But what are the world's rarest diseases? It can be a tricky question...
What is a rare disease?
This action plan will harness the power of rare disease advocates, patients and families, clinicians, researchers, peak bodies, industry and government to improve care for people with rare diseases. What is a rare disease? A rare disease is one that is very uncommon. The most widely accepted ...
This was a huge step forward in the eyes of many doctors and patients, as it served as an announcement to the nation that obesity is not a personal choice, but a complex, legitimate health condition. Recognizing obesity as a disease is also important because it means that, like cancer, ...
But these days, we do have an approved gene therapy, and also a lot of clinical trials focusing on gene therapy for a variety of Inherited Retinal Diseases. So on this Rare Disease Day, I think the future of Inherited Retinal Diseases as it comes to gene therapy is bright, ...
Multisystem inflammatory syndrome in children, or MIS-C, resembles a rare childhood illness called Kawasaki disease. Prolonged fever, body rash, red eyes, cracked lips, swollen glands, gastrointestinal symptoms and swelling of the hands or feet are some signs. Multisystem inflammatory syndrome in ...
Malignant mesothelioma is a rare cancer that develops in the lining of the lungs, abdomen, or other organs after asbestos exposure. It’s an aggressive disease, but treatment from a specialist may help you live a longer, fuller life. Learn how Mesothelioma Hope can connect you or a loved ...
whoisamagazineeditorandDorothyWoodruff?s granddaughter. Whydidtheygothen? Well,theywantedto dosomethinguseful.Soon,however,theyrealizedwhattheyhadundertaken. Theymovedinwithalocalfamily,theHarrisons,and,likethem,hadlittleprivacy,rare baths,andablanketofsnowontheirquiltwhen theywokeupinthe morning.Some mornin...
Even if you're born with a risky gene pattern, there are ways you can reduce your chance of triggering the disease. “Lifestyle and environmental factors can influence the risk of developing Alzheimer's - even in those who have inherited genetic risk factors,” notes Dr MacSweeney. These ar...