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Join the 14th World Congress on Rare Diseases and Orphan Drugs, June 2-3, 2025, in Amsterdam. Explore breakthroughs in research, treatment, and innovation to transform rare disease care globally.
How has rare disease care changed over the last few years? And what might we expect from the next five? We attended the Rare Disease Day Virtual Parliamentary Event to find out. The rare disease community has a golden opportunity to transform the way car
Living with a rare disease substantially impacts mental health. Many of the drivers of poor mental health reflect issues specific to managing rare conditions. To meet UK government commitments, there should be a focus on empowering healthcare professionals who treat rare disease patients and on ...
World Rare Disease 2019Scientific Committee will be honored to welcome you to attend the2ndWorld Congress on Rare Diseasesto be held duringNovember 25-26, 2019atDubai, UAEwith the theme “Hope: The Best Therapy for Rare Diseases”. Arare disease, also known as orphan disease, is any disease...
”As we approach Rare Disease Day 2025, I urge you to join me in raising awareness about Turner syndrome and other rare conditions. Let us work together to amplify the voices of those with rare diseases and ensure that they have access to the care and support they need to thrive.’ Read...
”As we approach Rare Disease Day 2025, I urge you to join me in raising awareness about Turner syndrome and other rare conditions. Let us work together to amplify the voices of those with rare diseases and ensure that they have access to the care and support they need to thrive.’ Read...
Rare disease research: My Scientific Journey Hear from Dr. Vorasuk Shotelersuk, MD, FABMG (Chulalongkorn University, Bangkok, Thailand) on his research in rare disease and how he leverages HiFi sequencing to help identify rare and novel pathogenic variants. ...
Expertise built through experience, networking and practical ‘hands on’ delivery “Variability is the law of life, and as no two faces are the same, so no two bodies are alike, and no two individuals react alike and behave alike under the abnormal conditions which we know as disease.”–...
s Human herpesvirus 1 Recombinants Plasmid-50 mini Plasmid DNA Extraction Kit Flu A/B & SARS-CoV-2 Detection Kit Condalab Potassium Telurite 40nm Citrate-stabilized Gold COVID-19 Ag/Ab Diagnostic Case Report: Refusal of an Veno-Arterial Extracorporeal Membrane Oxygenation Due to Malignant Disease...