highlighted a multifaceted strategy that is making significant strides in steadily advancing care for patients with rare diseases. Key measures include the creation of a national rare disease list, expanded insurance coverage, improved clinical guidelines, and accelerated drug development. ...
BEIJING -- A total of 13 rare-disease drugs have been added to the latest edition of China's medical insurance drug catalog, bringing the total amount of such medicines covered by medical insurance in the country to more than 90. The newly-added items on the catalog, which was jointly rel...
OK bill advances to help victims of rare disease gain insurance coverage
However, despite their promise, advanced therapies also present challenges – including concerns about long-term safety and durability and the high cost of development and treatment. Costs can reach millions per patient, raising issues regarding reimbursement, insurance coverage and equitable access, and ...
However, efforts have been made to expand the medical insurance coverage of rare diseases to reduce the medication burden for more rare disease patients. “An obvious change that can be felt is that rare disease patients ...
To alleviate the patients of their financial burdens, China has also expanded the coverage of its medical insurance. Earlier this year, 15 rare disease drugs have been incorporated into an updated catalog of medicines covered by China's national medical insurance, resulting in more urgently needed ...
Finally, due to the lack of data from the pre-implementation period, this study was unable to assess the impacts of the negotiation policy on the utilization and affordability of the rare disease drugs. Conclusion The health insurance reimbursement policy in a tier-one city has been operating ...
We are an in-network provider with most commercial health insurance plans. Interested In Partnering? Contact Us Specialties Rare Disease Cardiology Pediatrics Neurology Oncology Services Genetic Counseling Genetic Test Ordering Clinical Trial Matching & Recruitment ...
Lack of insurance coverage and governmental incentives to create a favorable and equitable payer management system cause families to carry the burden of the high cost of treatment. As a result, despite understanding the disease severity and knowing the benefit of an existing treatment, patients and ...
Rare disease (RD) management and orphan drug development in India face various hurdles regarding the implementation and adoption of comprehensive policies, lack of dedicated regulatory frameworks, and absence of epidemiological data. Current rare disease