Rare Disease Day 2025 February 28, 2025 in the WorldRare Disease Day is observed on February 28, 2025. Each year it takes place on the last day of February, making its occurrence February 29th in a leap year. Established in 2008 by EURORDIS (European Organisation for Rare Diseases) and ...
Rare Disease Day 2025 February 28, 2025 in the WorldRare Disease Day is observed on February 28, 2025. Each year it takes place on the last day of February, making its occurrence February 29th in a leap year. Established in 2008 by EURORDIS (European Organisation for Rare Diseases) and ...
RARE Youth Revolution is a news and opinion digital platform, dedicated to powering up the voices of the youth rare disease community.
Rare Disease Day timeline 1796 The First Vaccine Edward Jenner, a country doctor living in England, performed the world's first vaccination saving potentially millions of people from smallpox. 1885 The First Rabies Vaccine Nine-year-old Joseph Meister, who had been mauled by a rabid dog, was ...
One more year, on Rare Disease Day, we take the opportunity to acknowledge the dedication of everyone within the rare disease community: healthcare professionals, researchers, patients, and families. Today is not only a day to reflect on the challenges faced by people with rare diseases, but ...
Declare it loud and proud:I AM. TheRare Disease Day 2025 Collectioncelebrates individuality, resilience, and the power of awareness. Wear your pride, grow awareness, and make an impact today. SHOP THE COLLECTION. The Movement We want to make the invisible – visible. ...
Session ID: 2025-01-09:dde4cb2594464cd3d2bc8d3 Player Element ID: vjs_video_3 OK Close Modal Dialog On Rare Disease Day, Aleksandra Rachitskaya, MD, talks about how far treatment has come for inherited retinal diseases. Once an untreatable diagnosis, inherited retinal diseases ...
Finding SupportThrough Advocacy Organizations Patient advocacy organizations play a vital role in helping people with rare diseases live their best and fullest lives. We can help you find one or even start your own. Find your rare disease community...
One more year, on Rare Disease Day, we take the opportunity to acknowledge the dedication of everyone within the rare disease community: healthcare professionals, researchers, patients, and families. Today is not only a day to reflect on the challenges faced by people with rare diseases, but ...
Join the 14th World Congress on Rare Diseases and Orphan Drugs, June 2-3, 2025, in Amsterdam. Explore breakthroughs in research, treatment, and innovation to transform rare disease care globally.