A rare disease is a disease that affects only a small portion of the population. However, rare diseases are ...
UCLA Metabolism Theme Kara Ayik Mother to Rare Disease Patient... A Book for Children with Rare Diseases, Extraordinary! Available Shorlty Senior Representative David Y. Liu Chief Scientific Officer, Head... Protagonist Inc Qing Liu Founder & Principal Consultant ...
Yesterday, February 28, 2021, was Rare Disease Day! We celebrate on this day because the ‘rare’ Leap Day of February 29th only occurs once every four years. Everyone comes together on the last day of February to share their diagnosis stories, spread awareness, and show support for their ...
The rare disease community needs to stop thinking there is a “one size fits all” approach to drug development. We always complain about Pharma silos, and how it’s so hard to work with industry. Well, it’s hard to work with patient groups and the rare disease community, too. We cre...
The majority of participants expressed concerns about future deterioration inherent to the progression of HD, as well as the impact of the disease on themselves and others. This subtheme was identified amongst all three male participants and one female participant. Half of the participants acknowledg...
[32,33]. Psychosocial research is important to facilitate better understanding of the unique caregiving demands placed on parents and to explore how parents respond to and cope with the challenges of their child’s rare disease. This review will contribute to the knowledge base to inform ...
(i.e. understand the impact of both poverty and disease on the person), marginalisation (i.e. understand the impact of discrimination on stress) or intersectionality (i.e. take into account the exponential combined impact of disability, gender and race). A community psychology approach of ...
(LAC’s) Rare Book Collection. One is a short medical pamphlet published in Quebec in 1785 that explains the symptoms and treatment of a disease thought to have been a form of syphilis. The other is a proclamation on the subject of French fishing rights, issued by the Governor of ...
The disease is considered rare and only affects approximately one in a million people. There is currently no cure for Stiff Person Syndrome. In the wake of her diagnosis, the European leg of Dion's Courage World Tour has been rescheduled for 2024. Eight shows that were originally planned for...
Habitat loss and disease remain their key threats. YOU CAN 'ADOPT' A FERRET HERE VIA WorldWildlife.org Get our free mobile app This two-pound weasel is considered the rarest mammal in North America. It was one of the first animals to be listed as endangered when President Nixon signed ...