Rare Disease Day 2023 has been a hectic yet hugely rewarding time for the Wellcome Centre for Mitochondrial Research (WCMR) team who have been busy raising awareness of mitochondrial disease and dysfunction through several activities and events across the UK and beyond! Read our Rare Disease Day ...
Awareness and experience transfer are crucial, so being part of international networks/collaborations that interactively involve physicians, researchers, and patients with rare diseases is an inevitable necessity. Section Editor Isabelle Audo On this Rare Disease Day 2024, we have to emphasize the huge ...
Indian Organization for Rare Diseases(IORD),a not-for-profitnational advocacy organization, working for the cause of patients with rare diseases, spanning over the last fifteen years,hosted an awareness Bikeathon and Walkathon, to commemorate theWorld Rare Disease Day-2023, ...
by Halsey Blocher | February 24, 2023 It’s hard to say exactly what impact rare disease awareness has had on our world. What has it taught us? Those of us with SMA and other rare diseases are keenly aware of the benefits that years of advocacy, research, fundraising, and education ...
Rare Disease Day blog: Endless Uncertainty: Living with a rare condition Iman Muzafar, a student at Kings College London and the finalist of the2023 Student Voice Competition, shares the poignant journey of a patient advocate with a rare condition, shedding light on the challenges of misdiagnosis...
Let's collaborate to increase awareness and provide support for people living with rare diseases.🌐 For more information: https://www.rarediseaseday.org/what-is-rare-disease-day/ Like This Article Share Learn More Mar 16,2023 Revolutionary Self-Test Kit from BioPerfectus: Empowering ...
A rare disease is a disease that affects only a small portion of the population. However, rare diseases are ...
The last day of February has been designated as worldwide "Rare Disease Day" to call attention to the public health issues associated with rare diseases, which affect nearly 30 million Americans and countless others around the world.The Kane County Health Department is part of the U.S. coaliti...
The last day of February has been designated as worldwide "Rare Disease Day" to call attention to the public health issues associated with rare diseases, which affect nearly 30 million Americans and countless others around the world.The Kane County Health Department is part of the U.S. ...
Rare Disease Day blog: Endless Uncertainty: Living with a rare condition Iman Muzafar, a student at Kings College London and the finalist of the2023 Student Voice Competition, shares the poignant journey of a patient advocate with a rare condition, shedding light on the challenges of misdiagnosis...