Primary car- egivers of children affected by disorders of sex development: Mental health and caregiver characteristics in the context of genital ambiguity and genitoplasty. Int J Pediatr Endocrinol 2010;2010:1-7.Fedele DA, Kirk K, Wolfe-Christensen C, Phillips TM, Mazur T, Mullins LL, Chern...
Burden among the Caregivers of Children with Intellectual Disability: Associations and Risk Factors The study considers whether there is a pattern of demographic, caregiver and child characteristics that specifically predict burden among the primary careg... SS Datta,PSS Russell,SC Gopalakrishna - 《Jou...
The goals of long-term management are to maximize functional independence and community engagement, minimize maladaptive behaviors, and provide family and caregiver support. Physicians play an important role in coordinating care through an interdisciplinary team; referring families for specialized services; ...
Deportation and the Traumatizing of a Generation ByRebekah Rollston|June 18, 2020 With less than five weeks to go before welcoming a second child, the patient sat in my exam room in tears. By all accounts, this was a routine appointment at the end of a routine pregnancy. Except on this ...
Primary caregiver parents (i.e. mothers) had concerns about feeding their ill child, infection, cleanliness and remembering tablets (nurse roles). Primary caregiver Means a person who assumes the principal role of providing care and attention to a child. Primary caregiver has the meaning set forth...
The prevalence of gender-diverse youth in a rural Appalachian Region. JAMA Pediatr. 2022;176:11. Article Google Scholar Sequeira GM, Guler J, Reyes V et al. (2023) Adolescent and caregiver perspectives on receiving gender-affirming care in primary care. Pediatrics. https://doi.org/10.1542/...
Costs to these women's experiences were not predominant, and benefits arising from the caregiving role lead to positive accounts of their lived experiences. Results have broader implications for the understanding of the primary caregiver situation and the improvement of interactions with individuals with...
Initial development and validation of the Caregiver Priorities and Child Health Index of Life with Disabilities (CPCHILD) This paper reports the development and validation of a disease-specific measure of health status and well-being of children with severe cerebral palsy (CP)... UGN Frcsc,DF Fr...
As in previous studies, we dichotomized composite scores (high quality vs low quality), given the limited range of possible values.27,28 Within the family-centeredness quality domain, the family is recognized as the principal caregiver and plays a central role in decision making. The family ...
Child maltreatment refers to any action, series of actions, or lack of action resulting in harm, potential harm, or threat of harm to children and adolescents younger than 18 years.5 Child maltreatment may refer to abuse or neglect by a parent, caregiver, or anyone in the context of a...