Watch a video of Rhonda, a PEM (Patient Education Manager) Meet more PEMs Join us for the next PNH event! Attend a free webinar or in-person event to learn from medical experts in PNH, hear from people living with or caring for someone with PNH, and connect with others in the communit...
PNH is a chronic, progressive, debilitating, and life-threatening ultra-rare blood disorder characterized by complement-mediated hemolysis (destruction of red blood cells).1,2PNH can strike men and women of all races, backgrounds, and ages without warning, with an average age of onset in the ...
There may be as many as 5,000-6,000 people in the U.S. who have PNH*. *ThisIsPNH (Apellis Pharmaceuticals) What is PNH? Let’s break it down in simple terms. Learn more about PNH, from its causes and symptoms to living with the condition. ...
These are not all the possible side effects of ULTOMIRIS. For more information, ask your healthcare provider or pharmacist. Call your healthcare provider right away if you miss an ULTOMIRIS infusion or for medical advice about side effects. You may report side effects to FDA at1-800-FDA-...
Conclusion: An ePRO system customized for AA and PNH was feasible to patients and their medical team in terms of adherence, satisfaction and performance, showing a high potential for these rare and chronic conditions. However, the integration into clinical workflows and hospital EHR is crucial for...
伴PNH克隆的获得性再生障碍性贫血临床特征及PNH克隆演变分析论文 万方数据
a. includes the preferred terms hypertension, accelerated hypertension, and malignant hypertension. In Studies C08-002A/B, C08-003A/B and C10-004 combined, 60% (47/78) of patients experienced a serious adverse event (SAE). The most commonly reported SAEs were infections (24%), hypertension...
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Other terms can be negotiated. Q:Can you produce small orders? A:Yes,we do. If your order is smaller than our MOQ, we can arrange special for you but the cost would be higher. Q: How to ensure your product quality? A:We...
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