Stigma and discrimination affect the health and wellbeing of people with sickle cell disease, especially women, say Sarojini Nadimpally , Keertana Kannabiran Tella , and Gargi Mishra Sickle cell disease is a genetic disorder characterised by abnormal haemoglobin and sickle shaped red blood cells. It...
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For people living with the disease, a sickle cell crisis can happen at any time. When it does, their rigid, sickle-shaped red blood cells become stuck in their blood vessels, blocking flow and causing extreme pain or breathing difficulties. A crisis can escalate into life-threatening complica...
These findings lend further support to the idea that people with sickle celldiseaseare less likely to be infected with HIV. However, further research is needed to determine whether the molecular differences uncovered in this study are related to this lower risk, or if other mechanisms are at pla...
The results are excellent, says Marina Cavazzana at the Necker-Enfants Malades Hospital in Paris, France, whose teamhas treated a 13-year-old boy with sickle cell disease using a different approach. Although the three patients did experience some adverse effects due to the chemotherapy, the...
Angiotensin-converting enzyme (ACE) inhibitors for proteinuria and microalbuminuria in people with sickle cell disease. 2015. /Sasongko TH, Nagalla S, Ballas SK. Angiotensin-converting enzyme (ACE) inhibitors for proteinuria and microalbuminuria in people with sickle cell disease. Cochrane Database ...
Background: Sickle cell disease (SCD) is a cause of frequent emergency readmissions. We examined trends in SCD emergency readmissions and inpatient mortality in England in relation to socio-economic status. Methods: Data from Hospital Episode Statistics were extracted for all ...
Improving sickle cell care by expanding treatment options, advancing new therapies and amplifying the voices of people with the disease
The gene-editing technology CRISPR has been used to change the genes of human babies, to modify animals, and to treat people with sickle-cell disease. Now scientists are attempting a new trick: using CRISPR to permanently cure people of HIV. In a remarkable experiment, a biotechnology ...
Children and young people (CYP) with sickle cell disease (SCD) are a 'missing voice' in the debate on biography and sociology of chronic illness, meaning we know little about the social consequences of the illness for CYP. This paper examines the meaning of fatigue (a common symptom) for ...