Jody L. ClaseyUniversity of Kentucky, Lexington, KY.Christopher J. McLouthUniversity of Kentucky, Lexington, KY.Mary B. SheppardUniversity of Kentucky, Lexington, KY.Michael A. SamaanUniversity of Kentucky, Lexington, KY.Lippincott Williams & WilkinsMedicine & Science in Sports & Exercise...
4th international symposium on the marfan syndrome, 1st international workshop for people with marfan syndrome, dovos, switzerland, 11–14 august 1996doi:10.1007/BF01957166StuartHutchisonPatrickO'GaraSpringer-VerlagEuropean Journal of Pediatrics
Families of People with Marfan Syndrome.The Relationship Between the Functioning of the Family System and the Life Quality of the Affected Persons.doi:10.12740/PP/ONLINEFIRST/114838Aleksandra Lewandowska WalterAgnieszka TrawickaMarta BogdanowiczLidia Woniak-Mielczarek...
People with Marfan syndrome (MFS) have clinical symptoms of hip pain, but to date, there is limited knowledge about hip-related structural abnormalities in these patients. Therefore, the purpose of this cross-sectional study was to assess hip-related structural abnormalities and patient-reported ...
Vessel rescue.(losartan may affect people with Marfan syndrome)(Brief article)Seppa, Nathan
Conclusion: In Marfan syndrome, many years (12.01 ± 11.61) elapse between the onset of first symptoms and correct diagnosis of the disease. People with Marfan syndrome have a worse OHRQoL than do the general population. Keywords: rare diseases; oral health-related quality of life; OHRQoL; ...