Letter to French President Emmanuel Macron, “Lysiane - French baby with a rare disease” Pierre Robin Europe (2018) https://pierrerobineurope.com/letter-to-macron/pdf/ Google Scholar [21] P. Pakter Letter to EU Health Commissioner Stella Kyriakides, “Rare Disease Patients and Access to Care...
“This amendment aims to root in law children’s family diversity in administrative forms submitted in school,”said Valérie Petit, MP for the majority REM party of President Emmanuel Macron. “We have families who find themselves faced with tick boxes stuck in rather old-fashioned social and f...