treatment and course. IGOS is the largest real-world database on GBS worldwide containing clinical data, biomaterial, electrophysiology and questionnaires on patient-reported outcome measures. Data are collected at standardized timepoints for up to three years after hospital admission. We finalized foll...
We collect data on the clinical presentation, diagnostics, validated clinical outcome measures, (response to) treatment, and we collect biomaterials (DNA, cerebrospinal fluid and serial serum samples). We aim to include at least 1000 CIDP patients with a follow-up of at least 2 years. ICOS ...
Disability measures have been developed for inflammatory neuropathies such as 7-point disability scale for GBS and the 10-point inflammatory neuropathy cause and treatment (INCAT) disability for chronic inflammatory neuropathies. The latter has been further modified into the overall disability sum score ...
GBS patients admitted for rehabilitation.SettingRehabilitation department, inpatient and outpatient, within a university-affiliated medical center.ParticipantsAll GBS patients admitted for rehabilitation and followed for a minimum of 3 years.InterventionsNot applicable.Main Outcome MeasuresPresence of HO, ...
Such investigations could open up perspectives for improving patient counselling and introducing possible alternative measures for patients whose predicted postoperative outcome is relatively poor. In addition to the sometimes uncertain preoperative estimation of the benefit of implanting a CI, a regular ...