Finding SupportThrough Advocacy Organizations Patient advocacy organizations play a vital role in helping people with rare diseases live their best and fullest lives. We can help you find one or even start your own. Find your rare disease community...
Finding SupportThrough Advocacy Organizations Patient advocacy organizations play a vital role in helping people with rare diseases live their best and fullest lives. We can help you find one or even start your own. Find your rare disease community...
(PSOD) has taken the initiative to enjoin various private and government organizations to conduct public awareness regarding the 2nd National Rare Disease Week which will be on February 21-28, 2011. Adopting the International Rare Disease Day theme "Rare but Equal", PSOD is conducting information ...
Almost all respondents (93%) had seen children with one or more of >350 different rare diseases during their career; 74% had seen a new patient with rare disease in the last 6 months. The most common problems encountered while caring for patients were: diagnostic delays (65%), lack of...
Wed May 8th, 2024 is Golf Day, World Ovarian Cancer Day, Free Trade Day, National Have a Coke Day, National School Nurse Day... and much more!
26 Sun National Pistachio Day 26 Sun National Letter to an Elder Day 27 Mon National Pokemon Day 27 Mon World Non-governmental Organization Day 28 Tue National Chocolate Soufflé Day 28 Tue Rare Disease Day 28 Tue National Pancake Day 2024 28 Tue World Spay Day March...
Facing a Dearth of Big Pharma Interest, Rare Disease Players Get Creative to Fund R&D November 20, 2024 · 7 min read · Heather McKenzie Genetown The Best Way to Answer Salary Interview Questions June 11, 2024 · 4 min read ·
Tue Apr 9th, 2024 is National Unicorn Day, National Equal Pay Day, International ASMR Day, National Winston Churchill Day, Soviet Occupation Day... and much more!
DECEMBER 29, 2024 | NATIONAL PEPPER POT DAY | TICK TOCK DAY By DougDec 28, 2024 Read DECEMBER 28, 2024 | NATIONAL CHOCOLATE CANDY DAY | NATIONAL SHORT FILM DAY | HOLY INNOCENTS DAY | NATIONAL CARD PLAYING DAY | PLEDGE OF ALLEGIANCE DAY ...
RARE DISEASE DAY USA | Last Day in February Read More SUPPORT NATIONAL SPINA BIFIDA AWARENESS MONTH Reach out to someone you know who has Spina Bifida, or has a family member living with it, and see if you can spend the day with them. Talk with them and learn a little bit about what...