NORD is dedicated to supporting education, elevating care, advancing research, and driving policy for rare diseases
NORD is dedicated to supporting education, elevating care, advancing research, and driving policy for rare diseases
G. (2003). The National Organization for Rare Disorders and the Experiences of the Rare Disease Community. Retrieved from www.rarediseases.org National Organization for Rare Disorders. (2003). NORD guide to rare disorders. Philadelphia: Lippincott Williams & Wilkins. Google Scholar Download ...
The National Organization for Rare Disorders (NORD), a non-profit organization serving 20 million Americans with rare diseases, provides an information database for knowledge on rare diseases. Many people diagnosed with a rare disorder need readily understandable information as well as support. NORD ...
The National Organization for Rare Disorders (NORD) is an American non-profit organization aiming to provide support individuals with rare diseases by advocating and funding research, education, and networking among service providers. It was founded in 1983 by Abbey Meyers, along with individuals with...
Rare diseases (RD) are individually rare, although encompass a significant proportion of the population, affecting not only the individuals but also their families. In Brazil RD is defined by the Ministry of Health as a disorder that affects up to 65 individuals in 100,000, or 1.3 individuals...
As far back as 1972, measures to combat rare diseases have been part of the Japanese national health system. Thanks to extensive support from the government, measures to combat rare diseases in Japan have made considerable progress over the past 40 years, including specific orphan drug legislation...
The Relationship between Oral Health and Brain Function WATANABE Makoto 日本歯科医学会誌 = Journal of the Japanese Association for Dental Science : JJDS (28), 60-63, 2009-03-31Maud GancelWassilios MeissnerFrançois Tison日本歯科医学会誌 ...
The unmet needs of the rare diseases community require additional innovative research and educational programs to reach the extensive global populations affected by the thousands of different rare diseases including activities with the National Organization for Rare Disorders and the Genetic Alliance.lt;/...
recognizing that a number of healthcare and knowledge issues are common to all rare diseases in spite of the wide variety of their clinical manifestation, has recently initiated the promotion of national plans and comprehensive strategies for improving the provision of care to rare disease patients....