More participants favored gastrostomy placement before pwMND presented with respiratory symptoms (45%) compared to onset of dysphagia (11%). Half believed pwMND placed gastrostomies too late. Participants were more likely to often/always recommend pwMND to have a gastrostomy (23%) than continue ...
John Eaglesham, ADI (UK) Ltd Chief Executive said: "COVID-19 has driven the need for pioneers in the NHS to trial new ways of communicating and caring for patients, particularly amongst at risk groups. Whilst this shift has been accelerated by the current pandemic, it could herald a long ...
Carers were also asked about patients' behavioural symptoms, such as apathy and loss of sympathy or empathy. Some 161 people with MND took part in the study in the UK and Ireland. Their results were compared with those of 80 people who do not have the condition. Future studies MND patients...
Overall both patients felt their quality of life with TV was better.Study participants perceive TV as a positive step,with improved symptoms and quality of life. Neither patients regretted the decision and would recommend it to others. This data will be used to support MND patients in making a...
NIV was started on onset of reported symptoms. All assessments, titration onto NIV and treatment was carried out in patients' homes.Results12 of 16 (75%) patients returned satisfaction questionnaires. 8 of 12 (67%) scored the service 10 (highly recommended) on the visual analogue scale, 4 ...
The disparity between the large number of available treatment options for control of disabling symptoms and the limited number of approved therapies has resulted in great variability between specialized treatment centers and the care received in more general neurology practice settings.doi:10.1080/...