“It was a welcome therapeutic method to sort through my negative feelings about having ALS.”Life expectancy and palliative careLife expectancy varies greatly for people living with ALS. A number of factors are associated with shorter ALS survival, including the bulbar onset form of the disease,...
motor neuron diseaseself-reported healthnon-motor symptomsquality of lifeObjective The IMPACT-ALS survey collected the experiences of people living with ALS (plwALS) across nine European countries. We aimed to better understand the functional burden of ALS to ensure the experiences of plwALS inform ...
This is a space for patients with slow disease progression to ask questions and share experiences. 4 days, 1 hour ago Young Adults With ALS This will be a place for young adults to connect, vent, share ...
In the United States, more than 5,600 people are diagnosed with ALS every year. In 90 to 95 percent of cases, there is no family history of the disease; it appears to occur randomly, with no clearly associated risk factors. Answer ALS’ research effort is “the single...
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Otto Knoke, who has lived with ALS for 20 years, “always has a big smile on his face, because he’s got his independence back” thanks to new technology that helps him communicate, says his wife Pamela Knoke. ALS, also known as Lou Gehrig’s disease, erodes muscular functions until...
My regular non-serious research posts cover in a humourous self deprecating manner living with MND. They include some alter egos all based on real people. Enjoy bloG! Voice banking… Banking your voice is just one challenge that living with MND chucks at you. Read about it, why it is wis...
Amyotrophic lateral sclerosis: Lou Gehrig's disease Amyotrophic lateral sclerosis (ALS), commonly called Lou Gehrig's disease, is a progressive neuromuscular condition characterized by weakness, muscle wasti... AD Walling - 《American Family Physician》 被引量: 187发表: 1999年来源...
A real time accounting of living with Lou Gehrig's Disease, (ALS) Amyotrophic Lateral Sclerosis, from diagnosis, through treatment and dealing with the VA and Social Security
by Credit: Pixabay/CC0 Public Domain A team led by investigators at Massachusetts General Hospital (MGH) has shown that people living with amyotrophic lateral sclerosis (ALS), or Lou Gehrig's disease, who carry a mutation in theC9orf72gene exhibit elevated levels of tau and phosphorylated tau...