On September 18, China’s National Health Commission, released their second list of rare diseases. This list includes 86 rare diseases including Giant Cell arteritis, Gorlin Syndrome, Fragile X Syndrome, etc. No. Chinese Name English Name 1 软骨发育不全 Achondroplasia 2 获得性血友病 Acquired ...
Shanghai publishes first list of rare diseases 上海:56种疾病纳入罕见病名录2016-02-29 21:02:52 看看新闻Knews综合关键词: Shanghai上海rarediseases罕见病Shanghai Live上海国际频道推荐视频 00:10 中美续签两国政府科学技术合作协定 一眼看天下3天前 00:09 美议员声称大蒜威胁安全 美禁止进口中国大蒜 一...
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However, many patients and their families face an uphill battle, as NF is yet to be officially recognized as a rare disease in China or included in the country’s list of rare diseases. That’s why the center is using ...
This encouraging change has reignited the hopes of many patients and their families. In the foreseeable future, China's national medical insurance scheme will benefit more patients as the country has been attaching great significance to efforts aimed at the prevention and treatment of rare diseases....
List of Members Task Force on Rare DiseasesStates, MemberExperts, PrivateLeaders, Projects
Greece has launched its own Rare Disease list, in Greek. Until now, no detailed classification existed for new rare diseases in the Greek language. The list is an analytical archive of every rare disease, and its sub-categories, including genetic mutatio
The reimbursement catalog now contains 3,088 types of medicines and covers common drugs, rare diseases, and novel medications. During a news conference on Tuesday, Zhang Ke, head of the administration, said that China has also launched nine rounds of national bulk buy programs targeting drugs and...
Rare Diseases & Disorders, Journal of Emerging Infectious Diseases, Journal of Infectious Diseases & Therapy, Journal of Infectious Diseases and Diagnosis,Journal of Rare Disorders: Diagnosis & Therapy, Orphanet Journal of Rare Diseases, Journal of Rare Disorders : Medical Diagnosis, Rare Diseases and...
What are the four main asbestos-related diseases? The four major asbestos-related diseases are: Mesothelioma:This is a rare and aggressive cancer that primarily affects the thin lining of the lungs (pleura) but can also occur in the abdomen (peritoneum) or around the heart (pericardium). The...