Focus on Five: How to Be a Patient Advocate: Providing another layer of safety for patientsPatient advocacy is at the heart of patient-centered care. A patient advocate can help alleviate confusion and ensure patient safety by being a supporter and a spokesperson for the patient. This can be...
I believe that almost all musculoskeletal problems are treatable, many fixable and that most people can be rehabilitated back to a high level of activities depending on the creativity and persistence of the patient and the medical team. Don't give up, don't stop exploring new methods, and kno...
in the oversight of, and access to, clinical trials. In the UK, the Rare Disease Framework similarly outlined ambitions to improve patient access to new therapeutics, premised on a commitment to consultation with patient representatives, and explicitly those from Black, Asian and minority ethnic (...
“When you deeply understand the disease, you can more easily see the person. That’s what we want, to matter; we want to be seen," Kyle Bryant, a patient with rare disease, director of rideATAXIA, and spokesperson for Friedreich's Ataxia Research Alliance (FARA) said.1 Many years ago...
The VHA states that it partners with the veteran regarding medical care and ensures participation by the veteran or a person they designate in all decisions about their care. They also encourage reporting of any concerns or complaints to the veteran’s team or to the VA patient advocate, especi...
~Janie, hypothyroid patient and site creator So what’s a GOOD DOC? He/She is one who: 1.Willingly prescribes a treatment with T3 in it.That means either synthetic T4 with synthetic T3, or T3 alone, multi-dosed, or a working NDT (There aren’t many left that work well.See this)...
“It makes (a patient) realize when it’s time to seek help and it gives (them) the tools to communicate more effectively with (their) health care provider as (they) go in to be evaluated,” she said. Exercise Donovan called exercise “the silver bullet” as it has...
needs to be done to assure that all who need it receive good mental health care. Another goal of World Mental Health Day is encouraging people to take the day to reflect on the state of their own mental health, chat about what mental wellbeing means and advocate for better mental health ...
As providers comply with patient access to open clinical notes requirements under the ONC information blocking rules, they must be mindful of writing a consult note for a good patient experience.
It can be particularly advantageous to have a patient advocate or loved one with you if you're dealing with a complex health issue; and this is also the case for some patients who are older, have more involved, chronic conditions or who have health issues, like dementia, that make advocat...