Access to and reimbursement of expensive therapies for rare diseases relies heavily on the demonstration of tangible benefits and the evaluation of cost-effectiveness. The considerable heterogeneity and slow disease progression in adults with SMA has contributed to the paucity of research and lack of ef...
or other diagnostic procedures if they have ownership in those testing centers or, if they receive significant reimbursement for those services, although there is no evidence that patients benefit more (Bishop et al, 2010).
All family day care educators (term used for registered carers who provide care for children for financial reimbursement in the carers own home) are eligible to participate in the study. The clusters for randomisation will be the fieldworkers (n = 5) who each supervise 10-15 educators. The ...
All family day care educators (term used for registered carers who provide care for children for financial reimbursement in the carers own home) are eligible to participate in the study. The clusters for randomisation will be the fieldworkers (n = 5) who each supervise 10-15 educators. The ...