Public Health Data Sharing Policy and Informatics Initiatives at China CDCYingjie Zhang
The arguments for sharing data, and the consequences of not doing so, have been thrown into stark relief by the Ebola and Zika outbreaks. In the context of a public health emergency of international concern, there is an imperative on all parties to make any information available that might ha...
Coronavirus disease 2019 (COVID-19) has highlighted the need for the timely collection and sharing of public health data. It is important that data sharing is balanced with protecting confidentiality. Here we discuss an innovative mechanism to protect health data, called differential privacy. Differen...
There is increasing recognition of the importance of sharing research data within the international scientific community, but also of the ethical and social challenges this presents, particularly in the context of structural inequities and varied capacity in international research. Public involvement is ess...
In this research we describe the public's comfort with sharing health data with third-party commercial companies for patient and business purposes and how this comfort is associated with demographic factors (sex, age, race/ethnicity, education, employment, income, insurance status, and self-reported...
Flinders University researchers expect their AI-driven data repository to improve public health surveillance and response.
public engagement facilitators within the European health data governance ecosystem. While the first case is from Germany (which research indicates has the lowest public trust in health care) and points to the risks of sharing health data, the second case focuses on benefits and comes from the ...
Publichealthdatasignalsagenuinecrisisinadolescentmentalhealth:risingratesofanxiety,depression,andhopelessness.Butasweworryabouttweensandteenswhoarestruggling,wecan'tignoreanothermountingeffect—theburdensthatareshoulderedbytheirfriendsandpeersinan"alwayson"world.Wehavestudiedteensandtechforoveradecade.Theirnetworksareeve...
The article discusses the ethical, legal, policy, and regulatory issues related to public health surveillance data. Topics discussed include the utilization of the data for understanding the disease burden and guiding the public health action, the blockage of data sharing through the storage of data...
Sharing my health data Health behaviours often imply intertemporal trade-offs. In this context, individuals may feel more or less concerned by the health of their future selves. "Psychological connectedness" is the extent to which we feel connected with our fu... E Bell,L Ohno-Machado,M Grand...