The Cystic Fibrosis Foundation (CFF) is a non-profit organization in the United States established to provide the means to cure and control cystic fibrosis (CF). The Foundation provides information about cystic fibrosis and finances CF research that aims to improve the quality of life for people...
Recent medical research at the Cystic Fibrosis Foundation (http://www.cff.org/research/) UK Cystic Fibrosis Trust (http://www.cftrust.org.uk) GeneTests GeneReview on Cystic Fibrosis (http://www.genetests.org/query?dz=cf) Cystic Fibrosis Australia Inc (http://www.cysticfibrosisaustralia...
The Cystic Fibrosis Foundation (CFF) is a non-profit organization in the United States established to provide the means to cure and control cystic fibrosis (CF). The Foundation provides information about cystic fibrosis and finances CF research that aims to improve the quality of life for people...
Cystic Fibrosis Foundation.https://www.cff.org/Living-with-CF/Treatments-and-Therapies/Medications/Vascular-Access-Devices-PICCs-and-Ports/; 2017. Accessed 1 Jan 2017. Ruf K, Winkler B, Hebestreit A, Gruber W, Hebestreit H. Risks associated with exercise testing and sports participation in cy...
Cystic fibrosis is the most common genetic disease in the Caucasian population and can lead to multisystem dysfunction, significant respiratory morbidity, and limited life span. The treatment burden to maintain health in this condition is significant and
The Northern New England Cystic Fibrosis Consortium (NNECFC) was created to develop and share information and research concerning the care and treatment of cystic fibrosis in Maine, New Hampshire and Vermont.
Some Cystic Fibrosis patients do not respond to modulator drugs.Credit: Cystic Fibrosis Foundation Other research aims to actively repair defective genes within a patient’s cells. This includes gene therapy, in which the mutated gene is supplemented by a healthy copy of CFTR, but the Foundation ...
Cystic Fibrosis Foundation http://www.cff.org American Lung Association http://www.lungusa.org National Heart, Lung, and Blood Institute http://www.nhlbi.nih.gov Inform yourself To find this and previous JAMA Patient Pages, go to the Patient Page link onJAMA's Web site athttp://www.jama...
Cystic fibrosis foundation patient registry: annual data report to the center directors, 2014. https://www.cff.org/2014_CFF_Annual_Data_Report_to_the_Center_Directors.pdf/. Accessed 11 Mar 2016. Hamosh A, FitzSimmons SC, Macek M Jr, Knowles MR, Rosenstein BJ, Cutting GR. Comparison of th...
Cystic fibrosis (CF) is the most common life-threatening autosomal recessive genetic disease in the United States with an incidence of 1 in 3,500 live births. According to the Cystic Fibrosis Foundation's (CFF) patient registry, approximately 30,000 children and adults in the United States are...