We interviewed 11 home caregivers of patients with ALS with a disease duration between 1.5 and 4years. Primary caregivers were predominantly female and were the patients' spouses. Daily caregiving time averaged 4–14h for 0.5–3.5years. Interview themes included helplessness and adaptation to life ...
The present study aims to examine the association between coping strategies and psychological distress in caregivers of ALS patients. Methods: Coping strategies were assessed in 96 ALS informal caregivers by means of the Coping Inventory for Stressful Situations. Data about caregivers' demographic ...
ALS leaves patients progressively disabled affecting all voluntary muscles including muscles to walk, move their arms, speak, and breathe- leading to respiratory distress and death. Patients become dependent on caregivers for all activities of daily living like eating, dressing and toileting. This ...
Gelinas DF, O’Connor P, Miller RG (1998) Quality of life for ventilator-dependent ALS patients and their caregivers. J Neurol Sci 1(160):S134–S136 Article Google Scholar McCullagh E, Brigstocke G, Donaldson N, Kalra L (2005) Determinants of caregiving burden and quality of life in car...
Caregiver experience, health-related quality of life and life satisfaction among informal caregivers to patients with amyotrophic lateral sclerosis: A cros... AIMS AND OBJECTIVES: This study set out to describe caregiver experience, health-related quality of life and life satisfaction among informal ...
About ALS About Progressive MS Clinical Trials Preapproval Access Policies Resources Patients & Caregivers Special Protocol Assessment (SPA) for Phase 3b Trial in ALS Brainstorm received written agreement from the U.S. Food and Drug Administration (FDA),
Overall, the results showed that the mortality risk for patients was greater when their caregiver suffered from poor mental health, even when factoring in patients' gender, age, disease severity and mental health. While caregivers may find their work rewarding and necessary, the everyday stress can...
The final month of life in patients with ALS. To study the health care experiences and palliative care needs of patients with ALS in their final month of life.Caregivers of decedent patients with ALS c... Linda,Ganzini,Wendy,... - 《Neurology》 被引量: 130发表: 2002年 The Meaning of ...
Case management as an adjunct to multidisciplinary care for als patients and their primary caregivers in the netherlands; no effect on quality of life or caregiver strainCreemers, HVeldink, JGrupstra, HNollet, FBeelen, AVan Den Berg, L H...
Background Amyotrophic lateral sclerosis (ALS) is a fatal disease requiring palliative care. End-of-life care has been well studied in patients with incurable cancer, but less is known about the quality of such care for patients with ALS. Aim To study whether the quality of end-of-life care...