This delay could also be attributed to the subtle onset and the nonspecific nature of early symptoms [64]. Overall, the prevalence of ATTR-CM can be described as rare in accordance with regulatory definitions for orphan disease [65, 66]. Our findings are consistent with previous meta-analyses...
ATTR amyloidosis. “I would like to create awareness of this disease. Even if the treatment doesn’t get to me in time, I don’t want anyone else to go through what I went through for the first five years. If people have symptoms, I want them to be aware that there is a treatment...
Cardiac symptoms were rare at the presentation, but 5 patients demonstrated evidence of amyloid cardiomyopathy dur- ing the follow-up. Mean disease duration at the time of the observation of evident cardiomyopathy signs was 4.5±2.7 years after neuropathy. Low creatinine clearance and proteinuria ...
Atrial fibrillation is a common issue for people with ATTR-CM because amyloid proteins build up in the heart and interfere with its ability to pump blood. Afib might not cause noticeable symptoms, but it can raise your risk of stroke. If you have ATTR-CM, talk to your doctor about getting...