Read full articleView PDF Eteplirsen for paediatric patients with Duchenne muscular dystrophy: A pooled-analysis LianeRanderee,Guy D.Eslick, inJournal of Clinical Neuroscience, 2018 2.1Ethics Two studies obtained writteninformed assentfrom the children and written informed consent form their parents or ...
The study protocol on genetic research did not foresee any form of joint decision by children and parents on whether they would take part in the genetic research: “The children were informed about the study by the research team but were not officially asked for their assent as part of the ...
In addition, they seem more vulnerable to the influences of their surroundings (eg, parents), and the voluntariness of their decisions is at least questionable.33 However, typical for children is 1Department of Medical Humanities, Julius Center, University Medical Center Utrecht, Utrecht, The ...